Personal Information

10. What is everyday life like? What is the quality of life
A common myth is that people with albinism have red eyes. In fact there are different types of albinism and the amount of pigment in the eyes varies. Although some individuals with albinism have reddish or violet eyes, most have blue eyes. Some have hazel or brown eyes.

People with albinism always have problems with vision (not correctable with eyeglasses) and many have low vision. The degree of vision impairment varies with the different types of albinism and many people with albinism are “legally blind,” but most use their vision for many tasks including reading and do not use Braille. Some people with albinism have sufficient vision to drive a car.

11. What limitations does the person have?
People with many types of albinism need to take precautions to avoid damage to the skin caused by the sun such as wearing sunscreen lotions, hats and sun-protective clothing. All forms of albinism are associated with vision problems.

12. What are some organizations that can help a family cope with a child's disorder?
http://www.albinism.org/faq/children.html - NOAH

http://www.aapos.org/displaycommon.cfm?an=1&subarticlenbr=62 - AAPOS


13. How possible is it that a cure will be found?
There is no treatment or cure for albinism. Since individuals with albinism have little or no melanin in their skin, they need to use a broad-spectrum sunscreen and wear adequate clothing when outside to prevent ultraviolet-induced damage to the skin. The use of sunglasses will reduce the symptoms of light sensitivity as well as protecting the eyes. An ophthalmologist can treat other eye or vision symptoms. Individuals with albinism should see a dermatologist regularly to be screened for skin cancer. Albinism does not alter life expectancy or have other serious health effects.